There is this wonderful underworld of parents who are raising children with special needs. I never imagined that I would be apart of this underworld but now I am. Parents who belong to this world understand one another because we have all experienced something similar. We “Get it”. Friends and family have the best intentionsContinue reading “Entry Nine- Underworld”
Author Archives: LanaMecoy
Entry Eight- Where we are today
I have shared a lot of my journey so far, but I wanted to change gears for a moment to give an update on where we are today. As I mentioned in an earlier post Oscar has been diagnosed with a genetic condition called 1P36 deletion syndrome which means that he is missing a portionContinue reading “Entry Eight- Where we are today”
Entry Seven- Asking for Help
I know that a lot of people will say “ask for help, you don’t have to do it alone”. But for me (and I am sure it is the same for most caregivers) it is really hard to ask for help. I am not sure why that is? Is it because as mothers or parentsContinue reading “Entry Seven- Asking for Help”
Entry Six- My Trauma
This was a big post for me to write. Six months ago, no way could I have written this out, it was too painful. I couldn’t talk about it for a long time and as I wrote and then proofread this post it still brings tears to my eyes. Some things will just never goContinue reading “Entry Six- My Trauma”
Entry Five- Balance
Does anybody have life balanced out perfectly? I certainly don’t. And it got even more challenging after Oscar was born. I often wonder if days would seem less crazy with two typical kids? I will never know! But for me, everyday is a constant balancing act. As I mentioned in a previous post “Entry Three-Continue reading “Entry Five- Balance”
Entry Four- Hats
When I was sick with cancer as a child I lost my hair due to chemotherapy. I had a hat. I think my Aunt Janet had given me this hat. For whatever reason it was the only hat I wore for months until my hair grew back. It was literally my security blanket. When peopleContinue reading “Entry Four- Hats”
Entry Three- Olivia
After we were discharged from the hospital (the first time) we were introduced to soooo many new people; Nurse Case Manager, Occupational Therapist, Physiotherapist, Speech Therapist, Deaf and hard of hearing Teacher, Blind Low Vision Therapist and a Dietician. We were overwhelmed with appointments. But I know that early intervention is really important and IContinue reading “Entry Three- Olivia”
Entry Two- “Welcome to Holland”
I had not heard of this famous poem “Welcome to Holland” prior to my social worker introducing it to me. She prefaced by saying “this poem may or may not speak to you” but I think you should read it. I read it, and it spoke to me. It is a poem written by aContinue reading “Entry Two- “Welcome to Holland””
Entry One- Where to start?
Everyone’s story is so different. Everyone’s journey is unique. I think that for you to fully understand why I made the decisions I did along the way, it is important for me to start at the beginning of my story. My story is long (like most I am sure) and I don’t want to boreContinue reading “Entry One- Where to start?”
