Entry Fifty Nine- Feeling Acknowledged

I am not sure if I shared that Oscar was discharged from neurology at The Hospital for Sick Children and referred to a community pediatric neurologist. Although it was (is) tough leaving the security blanket of the Children’s Hospital, it is great news that Oscar is currently not as “worrisome” to neurology as he onceContinue reading “Entry Fifty Nine- Feeling Acknowledged”

Entry Forty Five- “Small Percentages”

Back in October of 2020 Oscar had tubes put in his ears in the hopes of correcting some of his conductive hearing loss. The day of his procedure I was nervous (like any parent of any child going under a general anesthesia would be). Things had (have) been going so well and I was worriedContinue reading “Entry Forty Five- “Small Percentages””

Entry Thirty Eight- My “Special” Bond

I think that I now understand why parents of children who have special needs have a special bond with that child. At least I have come to understand my bond with Oscar. When I say that I have a special bond with Oscar, I should say that I have a very special bond with bothContinue reading “Entry Thirty Eight- My “Special” Bond”

Entry Four- Hats

When I was sick with cancer as a child I lost my hair due to chemotherapy. I had a hat. I think my Aunt Janet had given me this hat. For whatever reason it was the only hat I wore for months until my hair grew back. It was literally my security blanket. When peopleContinue reading “Entry Four- Hats”

Entry Three- Olivia

After we were discharged from the hospital (the first time) we were introduced to soooo many new people; Nurse Case Manager, Occupational Therapist, Physiotherapist, Speech Therapist, Deaf and hard of hearing Teacher, Blind Low Vision Therapist and a Dietician. We were overwhelmed with appointments. But I know that early intervention is really important and IContinue reading “Entry Three- Olivia”

Entry One- Where to start?

Everyone’s story is so different. Everyone’s journey is unique. I think that for you to fully understand why I made the decisions I did along the way, it is important for me to start at the beginning of my story. My story is long (like most I am sure) and I don’t want to boreContinue reading “Entry One- Where to start?”