Entry Sixty Six- One Line A Day

When my daughter was born I bought a book called, “One Line A Day.” It is a five year memory book and the intention of the book is to write one sentence daily. Every day for 5 years I wrote a sentence about my daughter. Things we did, funny things she said and all ofContinue reading “Entry Sixty Six- One Line A Day”

Entry Sixty Four- Chronic Stress

Being totally transparent, I went back on anxiety medication. I slowly realized that I was no longer feeling like myself and that I wanted to feel better. I don’t feel stigmatized by having to take medication, but maybe subconsciously I had prided myself on being able to manage my anxiety with exercise, writing, and therapyContinue reading “Entry Sixty Four- Chronic Stress”

Entry Sixty Two- “Interesting”

I have thought about that pediatric neurologist a lot since we left her office that day. I have thought about why she would have selected that particular field of medicine given her seemingly lack of compassion or consideration for her patients and their families. (For Reference see Entry Fifty Nine- Feeling Acknowledged). It didn’t makeContinue reading “Entry Sixty Two- “Interesting””

Entry Sixty One- He’s Cute, Right?

My son… he’s cute, right? I am his mom and probably a little biased, but he is cute, right? He has the most beautiful blue eyes and his sweet little smile can truly light up a room. It isn’t only me who thinks so…“He is so sweet I could work with him all day” ourContinue reading “Entry Sixty One- He’s Cute, Right?”

Entry Sixty- Same Worries, Different Circumstance

I can’t help but think of that woman I saw on the beach… The woman who was wearing the large sunhat that covered her perfectly bald head. (Entry Fifty Six- Acknowledgement) I had a therapy appointment a couple of weeks ago and I mentioned that interaction to my social worker. I became just as emotionalContinue reading “Entry Sixty- Same Worries, Different Circumstance”

Entry Fifty Nine- Feeling Acknowledged

I am not sure if I shared that Oscar was discharged from neurology at The Hospital for Sick Children and referred to a community pediatric neurologist. Although it was (is) tough leaving the security blanket of the Children’s Hospital, it is great news that Oscar is currently not as “worrisome” to neurology as he onceContinue reading “Entry Fifty Nine- Feeling Acknowledged”

Entry Fifty Eight- Leave The Safe

“Leave the safe, explore the new, return to the safe…” (What Happened To You? By Bruce D. Perry and Oprah Winfrey) About two years ago I started therapy. I was a mess. I can still remember my mom telling me that I looked like I was on the verge of tears all of the time.Continue reading “Entry Fifty Eight- Leave The Safe”

Entry Fifty Seven- A Cereal Moment

Oprah: …I am thinking back to when I was asked to list my favorite moments from The Oprah Winfrey Show. It wasn’t so much the big shows, the surprises or the famous guests- it was the quiet conversations. And the Cheerios girl is always one of the first to come to mind. An eleven-year-old girlContinue reading “Entry Fifty Seven- A Cereal Moment”

Entry Fifty Six- Acknowledgement

We went to the beach today. I was with my kids in the water when I heard a familiar voice asking my husband a question about our beach tent. I turned and looked and didn’t immediately recognize the woman. But I did notice her perfect bald head hidden by a large sunhat. It took meContinue reading “Entry Fifty Six- Acknowledgement”

Entry Fifty Five- Support Groups

After Oscar was first diagnosed, I was made aware of several different support groups relevant to our new situation. My parents eagerly joined these groups. I was a lot more hesitant. Perhaps I was in denial… By the time Oscar was 4months old we had been through a lot and had learned of both ofContinue reading “Entry Fifty Five- Support Groups”