When my daughter was born I bought a book called, “One Line A Day.” It is a five year memory book and the intention of the book is to write one sentence daily. Every day for 5 years I wrote a sentence about my daughter. Things we did, funny things she said and all ofContinue reading “Entry Sixty Six- One Line A Day”
Tag Archives: hearing loss
Entry Sixty Five- Three
Happy Third Birthday Oscar! This time last year Oscar was pulling up to stand, standing independently at a horizontal surface and was working on transitioning between surfaces. I remember asking Oscar’s physiotherapist when she thought Oscar would be walking independently? She said that most kids who have difficulties with motor planning typically are not walkingContinue reading “Entry Sixty Five- Three”
Entry Sixty Two- “Interesting”
I have thought about that pediatric neurologist a lot since we left her office that day. I have thought about why she would have selected that particular field of medicine given her seemingly lack of compassion or consideration for her patients and their families. (For Reference see Entry Fifty Nine- Feeling Acknowledged). It didn’t makeContinue reading “Entry Sixty Two- “Interesting””
Entry Sixty- Same Worries, Different Circumstance
I can’t help but think of that woman I saw on the beach… The woman who was wearing the large sunhat that covered her perfectly bald head. (Entry Fifty Six- Acknowledgement) I had a therapy appointment a couple of weeks ago and I mentioned that interaction to my social worker. I became just as emotionalContinue reading “Entry Sixty- Same Worries, Different Circumstance”
Entry Fifty Eight- Leave The Safe
“Leave the safe, explore the new, return to the safe…” (What Happened To You? By Bruce D. Perry and Oprah Winfrey) About two years ago I started therapy. I was a mess. I can still remember my mom telling me that I looked like I was on the verge of tears all of the time.Continue reading “Entry Fifty Eight- Leave The Safe”
Entry Fifty Four-Somedays I Am Just Over It
The other day was a struggle. Not anymore or any less of a struggle compared to any other day. I just felt it. And I hadn’t felt the struggle in a long time. I was over it. I had watched my son struggle to fall asleep the night before for over an hour. (I obviouslyContinue reading “Entry Fifty Four-Somedays I Am Just Over It”
Entry Fifty Three- An Analogy
Consider a fire at an elementary school. A veteran firefighter can walk right up to the flames and put them out, business as usual. In contrast, a first-grader witnessing his classroom burst into flames will experience minutes of intense fear, confusion and helplessness….a fifth grader in a different part of the building didn’t feel asContinue reading “Entry Fifty Three- An Analogy”
Entry Fifty Two- Not Every Mother
Not every woman wants to be a mother. Not every woman who wants to be a mother is able to be a mother. Not every mother feels comfortable celebrating her pregnancy because her pregnancy is filled with worry. Not every mother is able to carry her child for 9 months. Not every mother is ableContinue reading “Entry Fifty Two- Not Every Mother”
Entry Fifty – Stories
I think we all tell stories. We want to have control of our own narrative. The stories we choose to tell are the stories we want believed by others and by ourselves. “One system creates a story for public consumption, and if we tell that story often enough, we are likely to start believing thatContinue reading “Entry Fifty – Stories”
Entry Forty Nine- One of the Million Tiny Losses is You
In Entry Thirty Five- A Million Tiny Losses I talk about all of the small losses that I experience daily. I am sure that many of you can also relate to these losses. But there is one big loss that I failed to mention…me. There are a million tiny losses experienced by all special needsContinue reading “Entry Forty Nine- One of the Million Tiny Losses is You”
A Real Mom Story on Raising a "Special" Family 