Entry Sixty Five- Three

Happy Third Birthday Oscar! This time last year Oscar was pulling up to stand, standing independently at a horizontal surface and was working on transitioning between surfaces. I remember asking Oscar’s physiotherapist when she thought Oscar would be walking independently? She said that most kids who have difficulties with motor planning typically are not walkingContinue reading “Entry Sixty Five- Three”

Entry Sixty Three- “Fix You”

“When you try your best, but you don’t succeed When you get what you want but not what you need When you feel so tired, but you can’t sleep Stuck in reverse And the tears come streaming down your face When you lose something, you can’t replace When you love someone, but it goes toContinue reading “Entry Sixty Three- “Fix You””

Entry Sixty Two- “Interesting”

I have thought about that pediatric neurologist a lot since we left her office that day. I have thought about why she would have selected that particular field of medicine given her seemingly lack of compassion or consideration for her patients and their families. (For Reference see Entry Fifty Nine- Feeling Acknowledged). It didn’t makeContinue reading “Entry Sixty Two- “Interesting””

Entry Sixty One- He’s Cute, Right?

My son… he’s cute, right? I am his mom and probably a little biased, but he is cute, right? He has the most beautiful blue eyes and his sweet little smile can truly light up a room. It isn’t only me who thinks so…“He is so sweet I could work with him all day” ourContinue reading “Entry Sixty One- He’s Cute, Right?”

Entry Sixty- Same Worries, Different Circumstance

I can’t help but think of that woman I saw on the beach… The woman who was wearing the large sunhat that covered her perfectly bald head. (Entry Fifty Six- Acknowledgement) I had a therapy appointment a couple of weeks ago and I mentioned that interaction to my social worker. I became just as emotionalContinue reading “Entry Sixty- Same Worries, Different Circumstance”

Entry Fifty Nine- Feeling Acknowledged

I am not sure if I shared that Oscar was discharged from neurology at The Hospital for Sick Children and referred to a community pediatric neurologist. Although it was (is) tough leaving the security blanket of the Children’s Hospital, it is great news that Oscar is currently not as “worrisome” to neurology as he onceContinue reading “Entry Fifty Nine- Feeling Acknowledged”

Entry Fifty Six- Acknowledgement

We went to the beach today. I was with my kids in the water when I heard a familiar voice asking my husband a question about our beach tent. I turned and looked and didn’t immediately recognize the woman. But I did notice her perfect bald head hidden by a large sunhat. It took meContinue reading “Entry Fifty Six- Acknowledgement”

Entry Fifty One- Sunday

That quintessential lazy Sunday morning we almost never experience as a family because my husband is usually at work. This past Sunday was different, my husband was home and we all stayed in our pyjamas until almost 10:00am! We started the morning with a nice breakfast and then Olivia was asking to see some picturesContinue reading “Entry Fifty One- Sunday”

Entry Fifty – Stories

I think we all tell stories. We want to have control of our own narrative. The stories we choose to tell are the stories we want believed by others and by ourselves. “One system creates a story for public consumption, and if we tell that story often enough, we are likely to start believing thatContinue reading “Entry Fifty – Stories”

Entry Forty Six- Pressure

Somedays more than others I feel an extreme amount of pressure. There is so much pressure raising kids in general and even more so when your child has special needs. In regards to Olivia (my perfectly typical daughter) we ensure that she is enriched socially, cognitively, physically and emotionally. With Oscar (my perfect neuro- atypicalContinue reading “Entry Forty Six- Pressure”