When my daughter was born I bought a book called, “One Line A Day.” It is a five year memory book and the intention of the book is to write one sentence daily. Every day for 5 years I wrote a sentence about my daughter. Things we did, funny things she said and all ofContinue reading “Entry Sixty Six- One Line A Day”
Tag Archives: rare disease
Entry Sixty Five- Three
Happy Third Birthday Oscar! This time last year Oscar was pulling up to stand, standing independently at a horizontal surface and was working on transitioning between surfaces. I remember asking Oscar’s physiotherapist when she thought Oscar would be walking independently? She said that most kids who have difficulties with motor planning typically are not walkingContinue reading “Entry Sixty Five- Three”
Entry Sixty Four- Chronic Stress
Being totally transparent, I went back on anxiety medication. I slowly realized that I was no longer feeling like myself and that I wanted to feel better. I don’t feel stigmatized by having to take medication, but maybe subconsciously I had prided myself on being able to manage my anxiety with exercise, writing, and therapyContinue reading “Entry Sixty Four- Chronic Stress”
Entry Sixty Two- “Interesting”
I have thought about that pediatric neurologist a lot since we left her office that day. I have thought about why she would have selected that particular field of medicine given her seemingly lack of compassion or consideration for her patients and their families. (For Reference see Entry Fifty Nine- Feeling Acknowledged). It didn’t makeContinue reading “Entry Sixty Two- “Interesting””
Entry Sixty One- He’s Cute, Right?
My son… he’s cute, right? I am his mom and probably a little biased, but he is cute, right? He has the most beautiful blue eyes and his sweet little smile can truly light up a room. It isn’t only me who thinks so…“He is so sweet I could work with him all day” ourContinue reading “Entry Sixty One- He’s Cute, Right?”
Entry Sixty- Same Worries, Different Circumstance
I can’t help but think of that woman I saw on the beach… The woman who was wearing the large sunhat that covered her perfectly bald head. (Entry Fifty Six- Acknowledgement) I had a therapy appointment a couple of weeks ago and I mentioned that interaction to my social worker. I became just as emotionalContinue reading “Entry Sixty- Same Worries, Different Circumstance”
Entry Fifty Six- Acknowledgement
We went to the beach today. I was with my kids in the water when I heard a familiar voice asking my husband a question about our beach tent. I turned and looked and didn’t immediately recognize the woman. But I did notice her perfect bald head hidden by a large sunhat. It took meContinue reading “Entry Fifty Six- Acknowledgement”
Entry Fifty Three- An Analogy
Consider a fire at an elementary school. A veteran firefighter can walk right up to the flames and put them out, business as usual. In contrast, a first-grader witnessing his classroom burst into flames will experience minutes of intense fear, confusion and helplessness….a fifth grader in a different part of the building didn’t feel asContinue reading “Entry Fifty Three- An Analogy”
Entry Fifty One- Sunday
That quintessential lazy Sunday morning we almost never experience as a family because my husband is usually at work. This past Sunday was different, my husband was home and we all stayed in our pyjamas until almost 10:00am! We started the morning with a nice breakfast and then Olivia was asking to see some picturesContinue reading “Entry Fifty One- Sunday”
Entry Forty Six- Pressure
Somedays more than others I feel an extreme amount of pressure. There is so much pressure raising kids in general and even more so when your child has special needs. In regards to Olivia (my perfectly typical daughter) we ensure that she is enriched socially, cognitively, physically and emotionally. With Oscar (my perfect neuro- atypicalContinue reading “Entry Forty Six- Pressure”
A Real Mom Story on Raising a "Special" Family 