When my daughter was born I bought a book called, “One Line A Day.” It is a five year memory book and the intention of the book is to write one sentence daily. Every day for 5 years I wrote a sentence about my daughter. Things we did, funny things she said and all ofContinue reading “Entry Sixty Six- One Line A Day”
Tag Archives: genetic disorder
Entry Sixty Four- Chronic Stress
Being totally transparent, I went back on anxiety medication. I slowly realized that I was no longer feeling like myself and that I wanted to feel better. I don’t feel stigmatized by having to take medication, but maybe subconsciously I had prided myself on being able to manage my anxiety with exercise, writing, and therapyContinue reading “Entry Sixty Four- Chronic Stress”
Entry Sixty One- He’s Cute, Right?
My son… he’s cute, right? I am his mom and probably a little biased, but he is cute, right? He has the most beautiful blue eyes and his sweet little smile can truly light up a room. It isn’t only me who thinks so…“He is so sweet I could work with him all day” ourContinue reading “Entry Sixty One- He’s Cute, Right?”
Entry Fifty Eight- Leave The Safe
“Leave the safe, explore the new, return to the safe…” (What Happened To You? By Bruce D. Perry and Oprah Winfrey) About two years ago I started therapy. I was a mess. I can still remember my mom telling me that I looked like I was on the verge of tears all of the time.Continue reading “Entry Fifty Eight- Leave The Safe”
Entry Fifty Seven- A Cereal Moment
Oprah: …I am thinking back to when I was asked to list my favorite moments from The Oprah Winfrey Show. It wasn’t so much the big shows, the surprises or the famous guests- it was the quiet conversations. And the Cheerios girl is always one of the first to come to mind. An eleven-year-old girlContinue reading “Entry Fifty Seven- A Cereal Moment”
Entry Fifty Three- An Analogy
Consider a fire at an elementary school. A veteran firefighter can walk right up to the flames and put them out, business as usual. In contrast, a first-grader witnessing his classroom burst into flames will experience minutes of intense fear, confusion and helplessness….a fifth grader in a different part of the building didn’t feel asContinue reading “Entry Fifty Three- An Analogy”
Entry Forty Five- “Small Percentages”
Back in October of 2020 Oscar had tubes put in his ears in the hopes of correcting some of his conductive hearing loss. The day of his procedure I was nervous (like any parent of any child going under a general anesthesia would be). Things had (have) been going so well and I was worriedContinue reading “Entry Forty Five- “Small Percentages””
A Real Mom Story on Raising a "Special" Family 