Entry Fifty – Stories

I think we all tell stories. We want to have control of our own narrative. The stories we choose to tell are the stories we want believed by others and by ourselves. “One system creates a story for public consumption, and if we tell that story often enough, we are likely to start believing thatContinue reading “Entry Fifty – Stories”

Entry Forty Nine- One of the Million Tiny Losses is You

In Entry Thirty Five- A Million Tiny Losses I talk about all of the small losses that I experience daily. I am sure that many of you can also relate to these losses. But there is one big loss that I failed to mention…me. There are a million tiny losses experienced by all special needsContinue reading “Entry Forty Nine- One of the Million Tiny Losses is You”

Entry Forty Eight- My Alias

Sharing can be scary and believe it or not, I am scared of sharing. I still prefer to hide behind my “@arealmomstory” alias. Many of my social media “friends” from my personal social media accounts are unaware of my “real mom story”. In my posts I reveal my deepest thoughts and currently I am onlyContinue reading “Entry Forty Eight- My Alias”

Entry Forty Six- Pressure

Somedays more than others I feel an extreme amount of pressure. There is so much pressure raising kids in general and even more so when your child has special needs. In regards to Olivia (my perfectly typical daughter) we ensure that she is enriched socially, cognitively, physically and emotionally. With Oscar (my perfect neuro- atypicalContinue reading “Entry Forty Six- Pressure”

Entry Forty Four- February 10th

Everyone has special dates that stick out in their minds. For me of course those dates include birthdays and anniversaries but a new date was added to my “special dates” and that is February 10th. Feb 10, 2019 was the date of Oscar’s last seizure. I remember everything about that day. February 10, 2019 wasContinue reading “Entry Forty Four- February 10th”

Entry Forty Three- Panic Attacks

I had never had a panic attack before Oscar. If you have never had one, I will try to explain what they feel like to me. To me, it feels like I have lost control of my body and it is a conscious challenge to regain that control. I have experienced several. The last oneContinue reading “Entry Forty Three- Panic Attacks”

Entry Forty One- Humbled

It is so easy for me to sit in my own worries. I am humbled as I learn of other people’s experiences. I went to the hospital for an outpatient neurology visit last week. At this time, I truly have nothing to complain about. Oscar has been developing in a really positive trajectory and weContinue reading “Entry Forty One- Humbled”

Entry Thirty Nine- Start Where You Are

“Start where you are. Use what you have. Do what you can.” – Arthur Ashe Nobody starts off in the same place. And nobody finishes at the same destination. My son has a genetic deletion meaning that he is missing genetic information. He didn’t get to start his little life at the same place asContinue reading “Entry Thirty Nine- Start Where You Are”

Entry Thirty Eight- My “Special” Bond

I think that I now understand why parents of children who have special needs have a special bond with that child. At least I have come to understand my bond with Oscar. When I say that I have a special bond with Oscar, I should say that I have a very special bond with bothContinue reading “Entry Thirty Eight- My “Special” Bond”

Entry Thirty Seven- A Beautiful Story

In April of 2019 my son was taken via ambulance to the closest pediatric hospital because he was having difficulty breathing. He was 6 months old at that time. It felt like things were spiraling out of control that day. I remember that I had taken him to the walk-in clinic because he seemed toContinue reading “Entry Thirty Seven- A Beautiful Story”