Entry Fifty Six- Acknowledgement

We went to the beach today. I was with my kids in the water when I heard a familiar voice asking my husband a question about our beach tent. I turned and looked and didn’t immediately recognize the woman. But I did notice her perfect bald head hidden by a large sunhat. It took meContinue reading “Entry Fifty Six- Acknowledgement”

Entry Fifty Five- Support Groups

After Oscar was first diagnosed, I was made aware of several different support groups relevant to our new situation. My parents eagerly joined these groups. I was a lot more hesitant. Perhaps I was in denial… By the time Oscar was 4months old we had been through a lot and had learned of both ofContinue reading “Entry Fifty Five- Support Groups”

Entry Fifty Four-Somedays I Am Just Over It

The other day was a struggle. Not anymore or any less of a struggle compared to any other day. I just felt it. And I hadn’t felt the struggle in a long time. I was over it. I had watched my son struggle to fall asleep the night before for over an hour. (I obviouslyContinue reading “Entry Fifty Four-Somedays I Am Just Over It”

Entry Fifty Three- An Analogy

Consider a fire at an elementary school. A veteran firefighter can walk right up to the flames and put them out, business as usual. In contrast, a first-grader witnessing his classroom burst into flames will experience minutes of intense fear, confusion and helplessness….a fifth grader in a different part of the building didn’t feel asContinue reading “Entry Fifty Three- An Analogy”

Entry Fifty Two- Not Every Mother

Not every woman wants to be a mother. Not every woman who wants to be a mother is able to be a mother. Not every mother feels comfortable celebrating her pregnancy because her pregnancy is filled with worry. Not every mother is able to carry her child for 9 months. Not every mother is ableContinue reading “Entry Fifty Two- Not Every Mother”

Entry Fifty One- Sunday

That quintessential lazy Sunday morning we almost never experience as a family because my husband is usually at work. This past Sunday was different, my husband was home and we all stayed in our pyjamas until almost 10:00am! We started the morning with a nice breakfast and then Olivia was asking to see some picturesContinue reading “Entry Fifty One- Sunday”

Entry Fifty – Stories

I think we all tell stories. We want to have control of our own narrative. The stories we choose to tell are the stories we want believed by others and by ourselves. “One system creates a story for public consumption, and if we tell that story often enough, we are likely to start believing thatContinue reading “Entry Fifty – Stories”

Entry Forty Nine- One of the Million Tiny Losses is You

In Entry Thirty Five- A Million Tiny Losses I talk about all of the small losses that I experience daily. I am sure that many of you can also relate to these losses. But there is one big loss that I failed to mention…me. There are a million tiny losses experienced by all special needsContinue reading “Entry Forty Nine- One of the Million Tiny Losses is You”

Entry Forty Eight- My Alias

Sharing can be scary and believe it or not, I am scared of sharing. I still prefer to hide behind my “@arealmomstory” alias. Many of my social media “friends” from my personal social media accounts are unaware of my “real mom story”. In my posts I reveal my deepest thoughts and currently I am onlyContinue reading “Entry Forty Eight- My Alias”

Entry Forty Seven- Asking for Help II

I received a lovely surprise from my aunt the other week, a new book, “The Boy, The Mole, The Fox and The Horse” written by Charlie Mackesy. This book is filled with beautiful illustrations and words of wisdom. I have an older blog post, “Entry Seven- Asking for Help” that talks about my struggle askingContinue reading “Entry Forty Seven- Asking for Help II”