Entry Fifty Four-Somedays I Am Just Over It

The other day was a struggle. Not anymore or any less of a struggle compared to any other day. I just felt it. And I hadn’t felt the struggle in a long time. I was over it. I had watched my son struggle to fall asleep the night before for over an hour. (I obviouslyContinue reading “Entry Fifty Four-Somedays I Am Just Over It”

Entry Fifty Three- An Analogy

Consider a fire at an elementary school. A veteran firefighter can walk right up to the flames and put them out, business as usual. In contrast, a first-grader witnessing his classroom burst into flames will experience minutes of intense fear, confusion and helplessness….a fifth grader in a different part of the building didn’t feel asContinue reading “Entry Fifty Three- An Analogy”

Entry Fifty Two- Not Every Mother

Not every woman wants to be a mother. Not every woman who wants to be a mother is able to be a mother. Not every mother feels comfortable celebrating her pregnancy because her pregnancy is filled with worry. Not every mother is able to carry her child for 9 months. Not every mother is ableContinue reading “Entry Fifty Two- Not Every Mother”

Entry Fifty One- Sunday

That quintessential lazy Sunday morning we almost never experience as a family because my husband is usually at work. This past Sunday was different, my husband was home and we all stayed in our pyjamas until almost 10:00am! We started the morning with a nice breakfast and then Olivia was asking to see some picturesContinue reading “Entry Fifty One- Sunday”

Entry Fifty – Stories

I think we all tell stories. We want to have control of our own narrative. The stories we choose to tell are the stories we want believed by others and by ourselves. “One system creates a story for public consumption, and if we tell that story often enough, we are likely to start believing thatContinue reading “Entry Fifty – Stories”

Entry Forty Six- Pressure

Somedays more than others I feel an extreme amount of pressure. There is so much pressure raising kids in general and even more so when your child has special needs. In regards to Olivia (my perfectly typical daughter) we ensure that she is enriched socially, cognitively, physically and emotionally. With Oscar (my perfect neuro- atypicalContinue reading “Entry Forty Six- Pressure”

Entry Forty Five- “Small Percentages”

Back in October of 2020 Oscar had tubes put in his ears in the hopes of correcting some of his conductive hearing loss. The day of his procedure I was nervous (like any parent of any child going under a general anesthesia would be). Things had (have) been going so well and I was worriedContinue reading “Entry Forty Five- “Small Percentages””

Entry Forty Four- February 10th

Everyone has special dates that stick out in their minds. For me of course those dates include birthdays and anniversaries but a new date was added to my “special dates” and that is February 10th. Feb 10, 2019 was the date of Oscar’s last seizure. I remember everything about that day. February 10, 2019 wasContinue reading “Entry Forty Four- February 10th”

Entry Thirty Eight- My “Special” Bond

I think that I now understand why parents of children who have special needs have a special bond with that child. At least I have come to understand my bond with Oscar. When I say that I have a special bond with Oscar, I should say that I have a very special bond with bothContinue reading “Entry Thirty Eight- My “Special” Bond”

Entry Twenty Seven- By Two

We so happily celebrated Oscar’s second birthday last week. I have heard that some parents find their child’s birthday a stark reminder of the widening gap between their child and a typically developing child. I am finding this to be true. When your child is young, it is easier to “hide” their delays. As theyContinue reading “Entry Twenty Seven- By Two”