We went to the beach today. I was with my kids in the water when I heard a familiar voice asking my husband a question about our beach tent. I turned and looked and didn’t immediately recognize the woman. But I did notice her perfect bald head hidden by a large sunhat. It took meContinue reading “Entry Fifty Six- Acknowledgement”
Tag Archives: Polymicrogyria
Entry Fifty Five- Support Groups
After Oscar was first diagnosed, I was made aware of several different support groups relevant to our new situation. My parents eagerly joined these groups. I was a lot more hesitant. Perhaps I was in denial… By the time Oscar was 4months old we had been through a lot and had learned of both ofContinue reading “Entry Fifty Five- Support Groups”
Entry Fifty Four-Somedays I Am Just Over It
The other day was a struggle. Not anymore or any less of a struggle compared to any other day. I just felt it. And I hadn’t felt the struggle in a long time. I was over it. I had watched my son struggle to fall asleep the night before for over an hour. (I obviouslyContinue reading “Entry Fifty Four-Somedays I Am Just Over It”
Entry Fifty Three- An Analogy
Consider a fire at an elementary school. A veteran firefighter can walk right up to the flames and put them out, business as usual. In contrast, a first-grader witnessing his classroom burst into flames will experience minutes of intense fear, confusion and helplessness….a fifth grader in a different part of the building didn’t feel asContinue reading “Entry Fifty Three- An Analogy”
Entry Fifty Two- Not Every Mother
Not every woman wants to be a mother. Not every woman who wants to be a mother is able to be a mother. Not every mother feels comfortable celebrating her pregnancy because her pregnancy is filled with worry. Not every mother is able to carry her child for 9 months. Not every mother is ableContinue reading “Entry Fifty Two- Not Every Mother”
Entry Fifty – Stories
I think we all tell stories. We want to have control of our own narrative. The stories we choose to tell are the stories we want believed by others and by ourselves. “One system creates a story for public consumption, and if we tell that story often enough, we are likely to start believing thatContinue reading “Entry Fifty – Stories”
Entry Forty Nine- One of the Million Tiny Losses is You
In Entry Thirty Five- A Million Tiny Losses I talk about all of the small losses that I experience daily. I am sure that many of you can also relate to these losses. But there is one big loss that I failed to mention…me. There are a million tiny losses experienced by all special needsContinue reading “Entry Forty Nine- One of the Million Tiny Losses is You”
Entry Forty Eight- My Alias
Sharing can be scary and believe it or not, I am scared of sharing. I still prefer to hide behind my “@arealmomstory” alias. Many of my social media “friends” from my personal social media accounts are unaware of my “real mom story”. In my posts I reveal my deepest thoughts and currently I am onlyContinue reading “Entry Forty Eight- My Alias”
Entry Forty Six- Pressure
Somedays more than others I feel an extreme amount of pressure. There is so much pressure raising kids in general and even more so when your child has special needs. In regards to Olivia (my perfectly typical daughter) we ensure that she is enriched socially, cognitively, physically and emotionally. With Oscar (my perfect neuro- atypicalContinue reading “Entry Forty Six- Pressure”
Entry Forty Five- “Small Percentages”
Back in October of 2020 Oscar had tubes put in his ears in the hopes of correcting some of his conductive hearing loss. The day of his procedure I was nervous (like any parent of any child going under a general anesthesia would be). Things had (have) been going so well and I was worriedContinue reading “Entry Forty Five- “Small Percentages””
A Real Mom Story on Raising a "Special" Family 