Entry Fifty One- Sunday

That quintessential lazy Sunday morning we almost never experience as a family because my husband is usually at work. This past Sunday was different, my husband was home and we all stayed in our pyjamas until almost 10:00am! We started the morning with a nice breakfast and then Olivia was asking to see some picturesContinue reading “Entry Fifty One- Sunday”

Entry Fifty – Stories

I think we all tell stories. We want to have control of our own narrative. The stories we choose to tell are the stories we want believed by others and by ourselves. “One system creates a story for public consumption, and if we tell that story often enough, we are likely to start believing thatContinue reading “Entry Fifty – Stories”

Entry Forty Nine- One of the Million Tiny Losses is You

In Entry Thirty Five- A Million Tiny Losses I talk about all of the small losses that I experience daily. I am sure that many of you can also relate to these losses. But there is one big loss that I failed to mention…me. There are a million tiny losses experienced by all special needsContinue reading “Entry Forty Nine- One of the Million Tiny Losses is You”

Entry Forty Eight- My Alias

Sharing can be scary and believe it or not, I am scared of sharing. I still prefer to hide behind my “@arealmomstory” alias. Many of my social media “friends” from my personal social media accounts are unaware of my “real mom story”. In my posts I reveal my deepest thoughts and currently I am onlyContinue reading “Entry Forty Eight- My Alias”

Entry Forty Six- Pressure

Somedays more than others I feel an extreme amount of pressure. There is so much pressure raising kids in general and even more so when your child has special needs. In regards to Olivia (my perfectly typical daughter) we ensure that she is enriched socially, cognitively, physically and emotionally. With Oscar (my perfect neuro- atypicalContinue reading “Entry Forty Six- Pressure”

Entry Forty Five- “Small Percentages”

Back in October of 2020 Oscar had tubes put in his ears in the hopes of correcting some of his conductive hearing loss. The day of his procedure I was nervous (like any parent of any child going under a general anesthesia would be). Things had (have) been going so well and I was worriedContinue reading “Entry Forty Five- “Small Percentages””

Entry Forty Three- Panic Attacks

I had never had a panic attack before Oscar. If you have never had one, I will try to explain what they feel like to me. To me, it feels like I have lost control of my body and it is a conscious challenge to regain that control. I have experienced several. The last oneContinue reading “Entry Forty Three- Panic Attacks”

Entry Forty Two- I Encourage You To Write

I used to speak to my social worker weekly, then biweekly, and I now probably every other month. I still cry for varying lengths of time during every session but I do feel lighter after, like a bit of my worry is gone. “Silence reinforces the godforsaken isolation of trauma” (Bessel Van Der Kolk) IContinue reading “Entry Forty Two- I Encourage You To Write”

Entry Forty One- Humbled

It is so easy for me to sit in my own worries. I am humbled as I learn of other people’s experiences. I went to the hospital for an outpatient neurology visit last week. At this time, I truly have nothing to complain about. Oscar has been developing in a really positive trajectory and weContinue reading “Entry Forty One- Humbled”

Entry Thirty Eight- My “Special” Bond

I think that I now understand why parents of children who have special needs have a special bond with that child. At least I have come to understand my bond with Oscar. When I say that I have a special bond with Oscar, I should say that I have a very special bond with bothContinue reading “Entry Thirty Eight- My “Special” Bond”